NRAS Logo
Logged in as: pedro-pmc Search | Moderate | Active Topics | My Profile | Members | Logout

New Topic Post Reply
fao jenni bl Options
chockers
#1 Posted : Saturday, March 06, 2010 6:19:53 PM Quote
Rank: Advanced Member

Groups: Registered

Joined: 12/3/2009
Posts: 1,035
Location: in a house
Hi Jenni

thinking about your scleroderma
i never had raynaunds till later i can track back a few years .The shiny skin side
if you are like me .The scl has come along slowley .

i lost my wrinkles in 2008 sign face is getting tight .
now have reflux and bloating and fingers have changed since 2007

odd cutalues and i have lumps of caliesim but it has been slow .

love Christine
The chocolate eating housewife ...The washer woman .....naughty lady
jenni_b
#2 Posted : Saturday, March 06, 2010 8:15:25 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/3/2009
Posts: 2,237
Location: nr Southampton
Hi chrissie

thanks for your little postSmile

I have tight skin on my fingers (right hand particularly) and my forehead. I do get calcium little lumps in my finger tips on both hands. None there at the moment though. I have tightness on the left side of throat causing effort, discomfort and sometimes pain when I swallow. I know this is also part of the scleroderma.

when I was going into Bath Hospital, I met some poor ladies who were just blighted with the scleroderma and their arms, trunk, legs even scalp went like elephant hide and they had to be coated with oils and creams. Often, they had reynalds too and their fingers turned blue , some had even lost toes and fingers.

they were coming in for drip treatments of a drug- i think they called it naproxine or something. Some also took cyclosporin.

it is a horrid illness.

some people get the scleroderma mildly and some have it badly. For me it seems i have anything immune system and inflammation related almost!RollEyes

Anyway, I do hope you are well Chrissie

Love

Jenni xx

how to be a velvet bulldoser
chockers
#3 Posted : Saturday, March 06, 2010 9:43:44 PM Quote
Rank: Advanced Member

Groups: Registered

Joined: 12/3/2009
Posts: 1,035
Location: in a house
Hi Jenni it sounds to me that sorry you have it .

i am glad you have seen it .As its rare and morfa tpye where the skin looks all scarie is even rarer .
i find docs have never herad of it .How ever well trained .Let alone seen it .

i have only seen it though going to the agm ...
I think after hearing pfoff chris denton speaking when you have one or 2 things they sometimes run niceley beside each other mildley
or you get one that domaties .I am sure some people don,t get the raynaunds ????? and are very luckey might be wrong .

sometimes my skin looks ok .The spa people think its so soft ha ha sometimes its tight and i have lost my wrinkles .

chrissy
The chocolate eating housewife ...The washer woman .....naughty lady
Users browsing this topic
New Topic Post Reply
Forum Jump  
You can post new topics in this forum.
You can reply to topics in this forum.
You cannot delete your posts in this forum.
You can edit your posts in this forum.
You cannot create polls in this forum.
You cannot vote in polls in this forum.

SoClean Theme By Jaben Cargman (Tiny Gecko)
Powered by YAF 1.9.3 | YAF © 2003-2009, Yet Another Forum.NET
This page was generated in 0.118 seconds.